How do officially organized services meet the needs of elderly caregivers and their spouses with Alzheimer disease
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Slide 1 :
How does official service system meet the needs of spouse caregivers of persons with Alzheimer’s disease? Minna Raivio, MD,PhD University of Helsinki
Slide 2 :
Background Caregivers of people suffering from dementia need and benefit of support services Friction between the service system and the caregivers: Often the offered services are not accepted by caregiving families Large scale population based studies are scarce on this topic
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Aims of the study To study how the official services are used by the caregiving families? what are the subjective needs of these spouse-caregivers for our service system ? how our services meet the needs of caregiving families?
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Cross-sectional postal survey to spouse-caregivers of patients with Alzheimer’s disease (AD) in Finland A random sample of users from Alzheimer’s disease medication register (N= 1989 ) Methods HELSINKI TAMPERE LAPLAND NORTH CARELIA MIDDLE FINLAND
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Demographics 75% returned the questionnaire 1214 spouses acknowledged themselves as the main caregiver of the AD patient 63% of the caregivers were women Mean age of caregivers 78.2 years A third of caregivers had a poor subjective health
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Psychological and behavioral symptoms of spouses with Alzheimer’s disease (mean age 80y)
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Physical impairments of spouses with Alzheimer’s disease
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Gender differencies of caregivers facing with the caregiving challenges
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Official services most often offered for AD caregiving families in Finland Society’s financial support to caregiver 36% Various aids and devices (e.g. walking aid) 33% Physiotherapy 32%, of which 86% was rehabilitation to II world war veterans fixed by law A respite care in an old people’s home 31%
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Services wished and received by the families
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Satisfaction of the families to the services Only 39% of the families were satisfied with the services they received Only 29% found it easy to get information about available services Only 31% felt they could have any influence on what services they received
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Discussion Spouse caregivers of the AD patients were very old and many in poor health AD patients have surprisingly high rate of behavioral symptoms and need for continuous help Caregivers have adjusted well to their life situation, often satisfied with their marriage and have quite good psychological well-being
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Discussion Services meet poorly the needs of caregiving families Services wished but poorly met: financial payment from the community physiotherapy for the dementia patients, which will vanish when war veterans pass away house cleaning home respite for few hours to get free time
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Discussion Very large and representative population sample of AD patients and their spouses Needs of the caregivers have not been examined before
Slide 15 :
Multi-disciplinary investigator team Minna Raivio, MD, PhD geriatrician Ulla Eloniemi- Sulkava, PhD, registered nurse Marja- Liisa Laakkonen, MD,PhD, geriatrician Marja Saarenheimo, PhD, professor of psychology Minna Pietilä, PhD, sosiologist Tiina Huusko,MD,PhD, geriatrician Anna Mäki-Petäjä Leinonen, PhD, lawyer Reijo Tilvis, MD, PhD, professor of geriatrics Kaisu Pitkälä, MD, PhD, professor of public health The study was financially supported by Finnish Social Insurance Institution and realized by the Central Union for the Welfare of the Aged
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